Wednesday, April 21, 2010

What do we do now?

For awhile now we have been telling you how great Bryon is doing and that things are continuing as normal. We had our eight week MRI this past Monday and stayed overnight to see the Dr. on Tuesday.

After viewing the slides Dr. Jensen just chuckled and said "Exactly what am I supposed to measure? There is nothing there! I have never seen anything like this before."

We asked a few questions about Bryon's current medications and he has been instructed to stop taking his seizure medication, as a seizure is most unlikely in his current condition. That type of medication makes a person feel very "weird" as Bryon puts it, but really any drug could do that. He is very excited that he has one less drug on the menu.

I dared to ask the question about when will we take Bryon off the medication to see if the tumor is truly gone? Dr. Jensen admitted that no matter how awesome the results are, a person cannot be on chemo forever. He is going to discuss it with the drug company and see what they want to do. He is also going to press that if the tumor comes back, Bryon must be able to restart the treatments. We felt it was a reasonable proposal since it would really test the drugs capabilities. Regular chemo treatments are generally done for one year and Bryon is now a good month into the second year of the same treatment. Keep in mind, also, that remission is not possible without going ten years without re-occurrence after treatment. That's a long time for such an aggressive cancer.

In the previous post I mentioned that we would like all readers to list names of cancer victims. Unfortunately, we have another one to add to the pile. Bryon's 1st cousin and good friend was recently diagnosed with melanoma. It was one of those bad moles that we all ignore, and he was sent to the Huntsman Center on Monday and Tuesday for tests. Even though he may be out of the woods, the doctor he visited suggested that the entire Jacobson family (Bryon's mother's side) get a check up. Bryon has had two uncles, his mother, grandmother, and now his cousin with some type of cancer. Let this be a friendly reminder that even though some cancers are not genetic, you may be in a family that is prone to cancer in general.

2 comments:

  1. Sara this is so great! Bryon is a remarkable guy. He would have to be to capture your attention lol. I am so happy that things are continuing to go so well for him. Keep up the good work Bryon. Keep us posted! I can't wait for the 10 year mark when we get to read the post about him being in remission. Love ya girl

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  2. I love reading Bryons amazing results. I pray things continue to keep going so good!

    We are doing fine, so pleae don't feel like you need to do anything for us. Results were good today, so we feel much better and his radiation is only 5 days, so it wont be too bad! We are in Smithfield, so not too far away. Someday we will have to do lunch or something.

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