Business first: The next MRI will be in the first weeks of December at a new hospital that is covered by our insurance. Dr. Jensen at the Huntsman Cancer Hospital will still be Bryon's primary physician. Hurray...now on to more exciting news.
Bryon and I have been asked to participate in an interview with Myrexis; the drug company formally known as Myriad and the creators of Azixa.(The wonder drug that Bryon's trial was based on.)Typically when a company has success in a clinical trial they tend to publish the results and make it public what happened during the trial. The purpose of the interview would be to get a patients perspective regarding how the drug (azixa) changed their life. Myrexis would like to get a quote or two from us which they would include in the articles made in a formal report of the drug trial.
I received this request in my email today and didn't know what to think of it, but it sure makes me proud of Bryon and how strong his faith must have been in order to keep going when the cancer got tough. He really is a trooper and I hope he is proud of himself for all that he has done for himself, his family, and other patients needing to be treated. Even if he decides not to participate in the interview it is a huge deal to be considered for something like this and it proves he really is a super hero. My hero!
Saturday, October 23, 2010
Thursday, October 7, 2010
A New Adventure Begins
We are so fortunate to live in a time when health care and technology are as advanced as they are. The MRI machine alone is a miracle worker and it doesn't even treat anything! What I am trying to say is that Bryon's tumor is still at bay and considered stable. We have been warned it will return someday, but Bryon has already lived long enough to be in a time and place that will give him the best opportunity for treatment and a healthy future. The doctor has stated that the drug trial is officially over since their is nothing left to experiment on and that Bryon will not be eligible for the drug in the future. Not to worry though, there are drugs now on the market that are as effective or more so than the drugs he was receiving. The new drugs are based on the additive that Bryon was on in conjunction with his traditional chemo. So things are looking up for Bryon and all the others we know with this strange tumor. I hope everyone knows that a person can live with this tumor now, it isn't an immediate death sentence anymore, like it was only two or three years ago. Bryon is moving on to a new adventure of living living with a tumor, and he improves every day. Speech, motor function, memory, attention span; it is all getting better with time and the proper attitude.
Sunday, October 3, 2010
City Kids
Bryon and I are going to Salt Lake for our regular MRI and doctor visit. Bryon will get his MRI on Monday afternoon and then we will hang around till Tuesday morning when we will check the results with Dr. Jensen. This should be an interesting visit since we never got to see the last MRI. We will be able to compare the last one to the latest and see if there is ANY change at all. Bryon was very worried earlier this week, as was I, but now we are anxious and waiting to see what our future holds. As always, no news is good news so don't panic if nothing gets posted right away. We have lots to do so I will get around to do the new posting as soon as I can, so don't touch that dial as we will return after a brief break.
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